Thank you to all for attending, or your interest, in the Grandparents’ Afternoon hosted by the Olga Tennison Autism Research Centre at La Trobe University on 4th July 2014.
Your feedback was most valuable and we are pleased that the afternoon went so well. We have taken on board your suggestions for future events of this nature. It seems the Question and Answer session was the most popular part of the day. If you still have questions, you can submit them via our Ask a Research service on the OTARC website. This service is mainly for questions related to Autism research.
Resources from OTARC
Some of you commented that you would have liked more time to read the PowerPoint presentations. Both are linked here in PDF format
- The OTARC Story (PDF 6.8 MB)
- Professor Dissanayake’s presentation. (PDF 836.5 KB)
- ESDM book flyer (PDF 514 KB)
- Funding and Service Options (PDF 1.1 MB)
Some good Australian websites
From your feedback many of you wanted more information about resources. AMAZE would be your first stop but there are also many resources available online. I will list some here:
- Raising Children Network (Autism section), which provides evidence based information about ASD, and parenting a child with ASD.
- Positive Partnerships – this site is dedicated for school aged children and parents, family members and professionals can undergo online training. You need to register, but it is free.
- Autism Speaks – an American site full of information – there are also articles by and for grandparents.
- ESDM anywhere – a site about early intervention -You may need to be connected to FACEBOOK
- Spectrum Journeys – for online resources.
- AMAZE (formerly known as Autism Victoria) – 1300 308 699 or 9885 0533
- AMAZE Library
- Autism Inclusion Support Co-ordinators
- Olga Tennison Autism Research Centre (OTARC) website
- National Autistic Society (UK) – full of useful information.
Books and Book Sellers
Some of you were also interesting in suitable books and book outlets. Here are some suggestions.
- The Australian Autism Handbook – The Essential Resource Guide for Autism Spectrum Disorder published May 2008, by Jane Curry Publishing
- Footprint books
- Open Leaves
- The Book Depository
- Future Horizons
- “Through the Maze” produced by the Association for Children with a Disability (ACD) – For a full PDF of this useful booklet
- How to Transition to Tertiary Education (books)
Workshops on various topics
We were also asked if we run workshops on various topics, such as toilet training, reading, behaviour management, diet etc. These workshops are already available through other sources. Check out Outside the Square and Irabina’s program of workshops on a large variety of topics.
Outside the Square Psychology is a fee-for-service psychology practice in Melbourne’s Eastern Suburbs and some regional areas.
20 Banksia St, Burwood VIC 3125 – (03) 9808 3917 (Kirsty)
Irabina – 193 Bayswater Road, Bayswater 3153
Orla Murphy – Education Manager – 9720 1118 or email@example.com
Orla will send you the program of events on request. There is a charge, but you do not have to have a child at the centre.
There are other providers and OTARC often posts their promos on our Facebook page.
Grandparent Support Group
There was also interest on the day for a support group for grandparents. Aspergers Victoria runs a group that meets on first Friday of the month at 10am at Salvation Army Hal, Wantirna Road Ringwood. There are also groups in Northern and Western suburbs to which grandparents and parents can go. Yearly subs are $20 ($45 in first year). Includes guest speakers and newsletter four times a year.
There is also the Autistic Family Support Association that may be helpful.
Carers Victoria also runs groups for grandparents. It is free to join.
If you are unable to attend support group meetings but would like to share information and ideas with other grandparents, we could look into setting up a LISTSERVE for you. It would mean that you would all get emails from each other. If you are interested in this option, please contact me at firstname.lastname@example.org. If enough people are interested we will set one up.
We also encourage you to visit the Autism Speaks Grandparents’ Page, which includes a PDF “Grandparents’ Guide to Autism” and other useful resources.
Once again, thank you for attending the Grandparents’ Afternoon and for your interest in our research.
Parents are also welcome to use this list. We will try and update it from time to time.