autism – Page 2 – Olga Tennison Autism Research Centre

I’m Dying to Speak to You

Approximately 7 min read

In this post written for autism acceptance month, autistic anthropologist Gerald Roche discusses connections between the communication styles and life expectancy of autistic people, and encourages sociolinguists, linguistic anthropologists, and applied linguists to help work towards a better life for autistic people.

Content warning: This post discusses suicide, sexual and physical violence, discrimination, and negative attitudes about autistic people. If you are in Australia and find this post distressing, you can call Lifeline on 13 11 14 or chat online. Lifeline offers language support services. For non-urgent information about autism, call the Australian national autism helpline on 1300 308 699.

OTARC Seminar Series

Autism and self harm: Developing a better assessment tool

This talk contains content about self harm.

Victoria Newell will :

review the prevalence of suicidality in Autistic people and self-harm as a risk factor
review existing self-harm assessment tools in Autistic and general population adults
discuss preliminary findings to develop a self-harm assessment tool with and for Autistic adults using focus groups and cognitive interviews
discuss what’s next – exploring measurement properties using an online survey.

Supports and practices for daily living

Neuroaffirming care values the strengths and differences of autistic…

Full title: Neuroaffirming care values the strengths and differences of autistic people, those with ADHD or other profiles. Here’s how

We’ve come a long way in terms of understanding that everyone thinks, interacts and experiences the world differently. In the past, autistic people, people with attention deficit hyperactive disorder (ADHD) and other profiles were categorised by what they struggled with or couldn’t do.

The concept of neurodiversity, developed by autistic activists in the 1990s, is an emerging area. It promotes the idea that different brains (“neurotypes”) are part of the natural variation of being human – just like “biodiversity” – and they are vital for our survival.

This idea is now being applied to research and to care. At the heart of the National Autism Strategy, currently in development, is neurodiversity-affirming (neuroaffirming) care and practice. But what does this look like?

Study summary

Could supporting self-determination help Autistic adults improve their quality…

Full title: Could supporting self-determination help Autistic adults improve their quality of life?

This is a summary of the latest paper by PhD candidate Helen Andrews – “The Relationship Between Autistic Traits and Quality of Life: Investigation of Indirect Effects Through Self-Determination“. This paper was the outcome of their honours project, supervised by Dr Simon Bury and Associate Professor Darren Hedley.

Health and wellbeing

Deciphering the connection: Autism and sleep quality in adults…

Approximately 9 min reading time. Downloadable version available here [ PDF 112KB].

Adequate and refreshing sleep is important for health and wellbeing. Poor sleep quality or insomnia can negatively affect multiple aspects of physical and mental health and can impair daytime functioning. Autistic adults generally report poor sleep quality compared to non-autistic adults, and for most Autistic adults, getting good quality sleep each night can be a challenge.

man in bed eyes opened suffering insomnia and sleep disorder

Common sleep issues reported by Autistic adults include:

difficulty falling asleep
night waking
shorter night sleep
poor sleep efficiency (percentage of time in bed spent sleeping)
daily (circadian) sleep-wake patterns that are not in tune with work, education and social activities.

Supports and practices for daily living

Sensory-friendly learning: Strategies for inclusive classrooms

Inclusive education: The Australian context

Inclusion involves the right to participate in school culture and curriculum for all students. Inclusive education ensures that every student, including those with disabilities, can access, participate, and feel supported in their educational goals. Inclusive schools foster professional learning communities that empower teachers to implement best practices and utilise current, evidence-based strategies, facilitating optimal learning outcomes for students.

Inclusion for students with sensory sensitivities is very important for participation in education. This importance is increasingly being recognised in government policy discussions.

Identification and diagnosis

Australia’s rates of autism should be celebrated -but real-life…

Full title: Australia’s rates of autism should be celebrated -but real-life impact, not diagnosis, should determine NDIS support

Nancy Sadka, La Trobe University and Josephine Barbaro, La Trobe University

Ahead of the release of the government’s review into the National Disability Insurance Scheme (NDIS), the topic taking centre stage is the diagnosis of autism. Over one third of people accessing the scheme list it as a primary disability.

NDIS Minister Bill Shorten has flagged changes to NDIS access, shifting the emphasis from diagnosis to the real-world impact of autism on learning or participation in society. He’s called for education and health systems to step up and be part of a broader ecosystem of supports.

“We just want to move away from diagnosis writing you into the scheme,” the minister said this week. “Because what [then] happens is everyone gets the diagnosis.”

Is autism “over diagnosed” in Australia due to the NDIS, or is it being better identified?

SACS

Autism prevalence in Australia: What we know so far

There have been no systematic studies on the prevalence of Autism in Australia. Accurate prevalence data allows for planning necessary services and supports, and also helps to build community understanding for Autistic Australians. We know that Autistic individuals make up approximately 30% of people accessing the National Disability Insurance Scheme (NDIS), however without accurate prevalence data, it is difficult to know what proportion of Autistic individuals are receiving funding.

In this blog post, we’ll delve into some of our research that aims to understand the prevalence of Autism in Australia. OTARC researchers have conducted four studies that have created a clearer picture of the situation and highlighted areas where more attention and support may be needed.

Learning with OTARC

Facing Stress: Coping Strategies, Resilience and Mental Health Outcomes…

Coping Strategies, Resilience and Mental Health Outcomes in Autistic Adults

There is consensus surrounding the poor mental health outcomes experienced by many in the Autistic adult population. While the non-autistic literature suggests that high stress represents a key contributor to poor mental health and well-being, individual resources such as coping and resilience have the potential to mitigate the negative effects of stress, accounting for individual differences across mental health outcomes. Despite emerging research showing high stress in Autistic adults, investigations of coping and resilience in this population remain limited.

Neurodiversity

What are ‘masking’ and ‘camouflaging’ in the context of…

Many autistic people and ADHD-ers report using “masking” and “camouflaging” in their lives. This is where people conceal certain traits and replace them with neurotypical ones to avoid being recognised as neurominorities.

Discover our latest news